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ALS Frequently Asked Questions
Neuroscience and Spine Institute
1-800-924-7620

CAROLINAS ALS CENTER

Lou Gehrig's Disease
Most people know something about Lou Gehrig, and how he faced a devastating disease with extraordinary courage. Yet few know the exact nature of the disease or its real name: Amyotrophic Lateral Sclerosis (ALS).

ALS is a progressive disease shared by as many as 30,000 Americans. Deterioration of motor neurons and pathways in the brain and spinal cord disrupt connections to muscles throughout the body, causing increasing paralysis. Although ALS patients are unable to control or use their voluntary muscles, their minds and sensory nerves remain unaffected.

While ALS, first described in 1869, is presently incurable, the situation is not hopeless. The Carolinas ALS Center research team is working diligently to better understand the disease's cause, potential cures and possible means of prevention.

Recent studies indicate that we can help ALS patients live longer, more productive lives. Our treatment approach combines new therapies with symptom relief, prevention of complications, and maintenance of optimal independence. Physical therapy and rehabilitation techniques teach patients to work around physical and functional disabilities. We believe proper diet, exercise, mental attitude, access to the most current therapies, and the support of family and friends allow our ALS patients to reach an optimal quality of life.

Comprehensive Care for ALS Patients
The Carolinas ALS Center is one of the most comprehensive ALS facilities in the United States, and the Southeast's only comprehensive facility for the study and treatment of degenerative neuromuscular diseases. ALS patients in the Southeast now have regional access to the finest medical treatment and care in the nation.

Through the interdisciplinary participation of key physicians and allied health professionals, Carolinas ALS Center provides a high level of diagnostic service and coordinated care. The center also offers extensive education and community resource programs. Its comprehensive multidisciplinary approach integrates all services into each individual patient care plan, providing significant benefit to ALS patients and their families.

The Carolinas ALS Center is supported by the Muscular Dystrophy Association.

Carolinas Neuromuscular ALS-MDA Center Loaner Library
The Loaner Library provides ALS patients with immediate access to assistive devices at no charge. Equipment available through the Loaner Library includes wheelchairs, walkers, baby monitors, voice amplifiers, LightWriters and laptop computers. For more information, call 704-355-0867

To Make An Appointment
Carolinas ALS Center is open from 8 a.m. to 5 p.m. at Carolinas Medical Center. To make an appointment, call 704-446-6257 or 800-924-7620. Mail medical records to: Carolinas ALS Center, P.O. Box 32861, Charlotte, NC 28232

 QUICK FACTS

To receive our free ALS newsletter, call 704-446-6257.

The Carolinas Neuromuscular/ALS Center opened in June 1998.

Our success is based on consistent patient care and ongoing, aggressive, hopeful alternatives.

Patients are seen by up to 25 different specialists in the course of a single follow-up clinic visit.

We offer participation in many clinical trials.

5 to 10 out of every 100,000 people will develop ALS.

The abnormal gene associated with some forms of inherited ALS has been identified.

There is no single laboratory test or procedure to diagnosis ALS.

The Carolinas ALS Center is one of the most comprehensive ALS facilities in the United States and the Southeast's only comprehensive facility for the study and treatment of degenerative neuromuscular diseases, giving ALS patients in the Southeast regional access to the finest medical treatment and care in the nation.

The Carolinas ALS Center was voted best clinic in the region by the Muscular Dystrophy Association.

With one of the largest clinical programs in the nation for Amyotropic Lateral Sclerosis (ALS), we offer more full-time dedicated staff than other similarly specialized programs in the country. We focus on living with the disease, not enduring its consequences.

The Carolinas ALS Center is among the largest number of clinical trials in the country for patients with motor neuron disease
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