Congenital heart disease (CHD) is the most common birth defect in the United States. About nine people in 1,000 are born with a congenital heart defect.
Due to medical advances and progress in treatment, patients with congenital heart disease – who historically did not live beyond childhood or adolescence – are reaching adulthood.
Adults with CHD face unique challenges. Adults who received treatment for their heart defect as a child may go into adulthood thinking that they have been "cured" and they no longer need to seek additional treatment for their heart condition. However, depending on the complexity of the heart condition, adult congenital heart disease (ACHD) patients require frequent follow-up and testing and sometimes need additional surgical intervention.
Congenital heart disease complications may not develop until years after initial treatment. Some common complications that arise in adulthood include:
Register to attend our free monthly support group in Charlotte with our ACHD program care provider and ACHD survivor, Katie Smiley, PA-C, to get your questions answered, talk with others and see first-hand why it’s important not only to receive regular care for ACHD, but to make sure it’s the right kind of care.
Email: Kathryn.Smiley@Carolinashealthcare.org | Phone: 704-381-3916