There is no specific cure for Ehlers-Danlos syndrome. Individual problems and symptoms are evaluated and cared for appropriately. Frequently, physical therapy or evaluation by a doctor specializing in rehabilitation medicine is needed.
People with EDS generally have a normal life span. Intelligence is normal.
Those with the rare vascular type of EDS are at significantly increased risk for rupture of a major organ or blood vessel. These individuals, therefore, have a high risk of sudden death.
Possible complications of Ehlers-Danlos syndrome include:
Chronic joint pain
Failure of surgical wounds to close (or stitches tear out)
Rupture of a hollow organ such as the uterus or bowel (only in vascular EDS)
Rupture of the eyeball
Calling your health care provider
Call for an appointment with your health care provider if you have a family history of Ehlers-Danlos syndrome and you are concerned about your risk or are planning to start a family.
Call for an appointment with your health care provider if you or your child have symptoms of EDS.
Genetic counseling is recommended for prospective parents with a family history of Ehlers-Danlos syndrome. Those planning to start a family should be aware of the type of EDS they have and its mode of inheritance (how it is passed down to children). This can be determined through testing and evaluation suggested by your health care provider or genetic counselor.
Identifying any significant health risks may help prevent severe complications by vigilant screening and lifestyle alterations.
Krakow D. Heritable diseases of connective tissue. In: Firestein GS, Budd RC, Harris ED Jr, et al, eds. Kelley's Textbook of Rheumatology. 8th ed. Philadelphia, Pa: Saunders Elsevier; 2008:chap 96.
David C. Dugdale, III, MD, Professor of Medicine, Division of General Medicine, Department of Medicine, University of Washington School of Medicine. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc.